Category Archives: Ageing

To my Father

A week ago my father took his final breath. He went quickly and peacefully after dinner. He’d had such a good day, eating all his food and even joking with his carers, that they did not have any inkling they were seeing a man in his final hours. I’m glad it happened that way.

If I could have spoken to my father, this is what I would have said.

I’m sorry, Dad, that I’m not by your side right now. I know you would have preferred to die in the house you had lived in for twenty five years. I’m really sorry I could not make that happen – you never got to see your house again.

But you were in a happy place. You didn’t like it initially, of course – who does? At Thanksgiving, when they asked you what you were thankful for, you said, ‘I’m thankful to be in this happy place.’

It was indeed a happy place, this small care home in a leafy suburb where they treated you as a person, not a number. Everyone knew your name and you knew theirs. They really looked after you. They are now shattered that you left without warning.

You were not a man of many words. We learned more about your life from files you had kept – which we found while cleaning up – than from anything you ever told us. You never talked about your achievements, almost as if you were a little embarrassed that they were not enough, that what you had done did not stack up in some people’s eyes. For a boy from a small town, born when Malaysia was still Malaya, who died 10,182 miles from his place of birth, you went a long way. You have a lot to be proud of.

Your own traditional Chinese father and mother did not speak English. You told me how, on your first day at an English-language school in Teluk Intan (Telok Anson in your days), you had no idea what the class teacher was saying. When he asked the whole class to stand up, your bum remained firmly on your seat. Fortunately, the teacher guessed that you did not understand. He was a Malay man who had married a Chinese woman and, having learned Cantonese himself, he said to you, ‘Hei sun, hei sun!’ (Get up, get up!).

From him you learned your first English words. And you never looked back. You were taught grammar the old-fashioned way. You had to learn spelling and syntax and punctuation; you knew the purpose of an apostrophe; you did not, unlike so many today, confuse ‘it’s’ with ‘its’.

But you were also a man of your generation and culture. Although you were interested in science, you never discussed science with me. When I announced my desire to become a physicist, you told me to ‘forget my fanciful dreams’. In those days, I suspect you could only imagine boys becoming physicists. Thank goodness that I inherited more than your logical mind – I also inherited your obstinacy. I ignored you. In the end I hope I made you proud.

Watching your physical deterioration this past year has been painful. There was no getting away from the reality that you no longer enjoyed the quality of life you’d previously had. You knew the end was near. You also knew the President’s name and what day of the week it was. I take comfort from the fact that you still smiled.

On your last full night on Earth, I’m told you sang through the night, keeping the entire house awake. In the morning you seemed oblivious to having been up. You continued bossing your carers about, demanding coffee.

I smile at this story. That extraordinary burst of energy would have worn anyone out.

Please, take it easy now, Dad. There is nothing more you need worry about, no one you must provide for. Sleep well.

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Filed under Ageing, Death

The Beginning of the End

On the first day of this year my father had a fall. His knees just buckled. My parents live in the United States, so Mum dialled 911 for the emergency services. The fire brigade arrived and took Dad to a hospital down the road.

When I heard what happened, I was filled with foreboding. My parents had reached a point in their lives when they could no longer cope on their own. There’s no shame in this, but both are stubborn and fiercely proud. Both had resisted help. They didn’t want anyone from Visiting Angels. Then, after no more than a few sessions, they sent away the home helper from Right at Home I had spent weeks trying to secure. ‘We gave it a go and it didn’t work,’ announced my mother.

Finally, it seemed to me the day of reckoning had come. And so it has turned out.

It’s extraordinary how tough growing old still is. Surely, in this era of precision technology, we should have figured out ways to make life more twilight-friendly?

The hospital kept Dad overnight for observation. He grumbled the whole time, insisting he did not need to be ‘observed’. He’s of a generation that never asks for help. He’s also a man who thinks he knows best; he won’t listen. For years, he walked with a limp. Among the papers stuffed into a side drawer, we found referrals for physiotherapy. Dad had not gone for physiotherapy, but he hoarded the slips as if they were trophies.

Two weeks later my father’s legs gave way again. The emergency services were called, he was transported to the same hospital and the cycle was repeated, only, this time, the doctors refused to release him without extensive tests.

The test results shocked us: they indicated double kidney failure. The problem wasn’t Dad’s kidneys at all; the problem was dehydration – Dad had stopped drinking water and was taking only Coca Cola. His primary physician concluded that my father had checked out mentally.

Looking back, I realise now that Dad gave up on life years ago. Retirement had been a delight at first, but without a job, my father lost his purpose. We all need a sense of purpose, however tenuous.

Dad never returned to the house in which he had lived for twenty six years. He was heart-broken about this, but he has too many medical conditions to make living in his own home an option. For the past decade, he and my mother have operated in the ‘I’m so old now, why bother?’ mode. They would go to their primary physician for regular check-ups and lab work, but if tests showed abnormalities requiring further investigation, both adamantly refused any additional diagnostics.

We now live with the consequences of those decisions. And we are seeing how cruel life can be: my father’s mind remains quite sharp, albeit with bouts of confusion, but he feels stuck as he’s bed-bound, no longer able to walk or do much for himself; my mother, on the other hand, has full use of her limbs but often can’t remember what she was thinking mere minutes before.

Both are frustrated and unhappy, my father especially so. This isn’t living, he screams. He’s screaming a lot these days. Dad is ready to go. He wants to die, only, his body won’t let him. And I cannot, in good conscience, do anything to accelerate his demise. Even if euthanasia were available, I would find it hard, as the person holding power-of-attorney over crucial healthcare decisions, to actively send my father to his death.

So we stumble on, down a path that we know is leading to the end. This is uncharted territory: none of us has been taught how to plan for that excruciating period before our final breath. The hours appear long and drawn out. Wills and funeral plans we know how to make; the UK government’s website even has a section dedicated to wills (as does the US government’s website). But on this, this struggle to die, there are no pearls of wisdom.

Inevitably, I question what I should and shouldn’t do. There isn’t a right answer or a wrong answer – nor do I believe a directive exists that could possibly cover the many grey areas. I have no wish to prolong my father’s suffering; at the same time, I wouldn’t forgive myself if we didn’t make sure that he’s as comfortable as we can possibly make him. But by making him more comfortable, I’m prolonging his life and therefore, to some extent, also prolonging want he regards as his suffering. I know this, but I have to do what I think is right.

I’m doing my very best – and that’s the most anyone could ask.

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Filed under Ageing, Life